School treats rant

This is a rant with a purpose.  It is to inform you all of something that happened to me yesterday.  I hope you will all learn from my mistakes, and maybe offer advice if you’ve been in this situation before.  This is about my DD-9 (High Functioning Autism/ADHD).

Every day I pack a Bento Box with FAILSAFE Gluten free foods for lunch and a little extra for a snack.  If there is a class event, I make sure to bring in a special snack.  But yesterday morning I receive a call from DD’s teacher… she had forgotten to call and let me know that she was rewarding the whole class with doughnuts and orange juice.  OK, so normally, I would rush something appropriate over to the school.  Even in my pajamas.  But, I had Kettle chips in the house and pretty much nothing else DD would eat.  She is super picky and hates most FS foods (but more on that later).   And they were eating RIGHT THEN.  What is a mom to do?

Luckily, DD had told the teacher she couldn’t have orange juice, (excuse me, Sunny Delight) but really wanted the doughnut holes.  My mind racing with the implications- with the biggest one being DD throwing a huge tantrum if she DIDN’T get the treat.  So I tell her that she can give Amelia the doughnut holes, but that by doing so she needs to: a) watch her for signs of tummy issues from the gluten, b) watch her behavior for potential issues from the crap in the doughnuts, and c) make sure Amelia visits the restroom several times throughout the day just in case…

So I get off the phone and beat myself up for the next hour.  It all comes back to ME not being prepared enough with a special treat in the classroom for times like this, ME not having enough food that DD will eat in the house at all times, ME not preparing DD enough for times when she will be confronted with non FS treats.  Ugh!!

K.

Failsafe Diet Explained

There are days when I think “What have I started?” in trying to manage, not only the kids & their challenges, but this way of eating.  I wish we could find a fast food place or take out restaurant that worked on evenings when things are chaotic, but there just isn’t one here (that I’m aware of).  So why continue?  Good question.

I cannot get past the fact that my DS7 (Aspergers) no longer complains of stomach pains and that his meltdowns have decreased from 80% to 35% (per our Behavioral Therapist) and my DS3 (ADHD) no longer climbs up the furniture like Spiderman nor dashes out in front of cars in a busy parking lot while I dig in my purse for keys.

This diet is hard to want to stick to & can, at times, be hard to navigate…but the benefits are worth it in my eyes.  I am a sucker for a shortcut or a timesaver…that is what motivates me to do this blog…if I can make this journey easier for just one other mom, mission accomplished.

Since we are a new blog…I will be posting, in the midst of recipes, helpful hints & links.  Check back often and thanks for reading.

Here is exactly WHAT the F.A.I.L.S.A.F.E. diet is…a great explanation that was extremely helpful to me when just starting out…

http://www.failsafediet.wordpress.com

B.

Our first post!

Woohoo & Welcome!

A bit about the F.A.I.L.S.A.F.E. diet…

Our families have special needs, and special needs require special accomodations.  We, like many other families, have undergone major overhauls in the way we function so that our children can have the best lives possible.  We have tried conventional (and some not-so-conventional therapies) in order to help our kids, with varying results.  It was this that has led us to our most recent overhaul-nutrition.

The thought of overhauling our culinary routine was daunting (to say the least).  It has taken us a lot of research and many hours of organization to get to where we are.  Starting out, Beth’s family just tried GF/CF (gluten & casein free) which appeared to work at times but was not hitting the nail on the head.  Digging a bit deeper into special needs nutrition we stumbled upon the vaious works authored by Sue Dengate (www.fedup.com.au).

Sue has written multiple books based on the Royal Prince Alfred Hospital’s (RPAH) elimination diet (www.cs.nsw.gov.au/rpa/allergy), a structured plan designed to test what food chemicals may be the cause of multiple physical & behavioral symptoms.   The list is numerous, but seemed to touch on everyone in our home.  Convinced that this was the direction we needed to take, we bought the books and then hit a snag…the books are all written for the Austrailian population.  There are many more similarities than differences in our food cultures, however, the differences are enough to stumble upon.  The internet was somewhat helpful, however, much of what was listed was out of date or just copies of what was already in the books.  It took months of “deciphering” the diet & modifying to US terms/brands before we could actually begin the process.

What we have come up with are many shortcuts, grocery lists, conversion lists, & new recipes that we would love to share with other US families that are also on this journey, & to ease the transition for the many new families to follow.

Please feel free to use any of the information that we post for your personal use.  We welcome your ideas & input…Enjoy & good luck.

B.

Disclaimer:  Beth & Kim (blog owners) are not medical professionals & this information is in no way to be used or substituted for medical advice.  Sue Dengate &/or the RPAH are not associated with nor have they endorsed the content of F.A.I.L.S.A.F.E.intheUSA.wordpress.com.